Cure spinal cord injury latest therapies, research, treatments
Cure Spinal Cord Injury latest therapies, research, treatments Lay overview (Chronic spinal cord injury only) Update: November 15th, 2021 This overview is meant to inform the SCI community of the cure spinal cord injury latest therapies, research, treatments (pre-clinical/ animal studies and clinical/human trials) focusing on the chronic stage of the lesion. It was [...]
CH’ASE spinal cord injury recovery treatment research (May 2020)
Chondroitininase a.k.a. CH’ASE spinal cord injury recovery treatment research Background information: The application of a bacterial enzyme called Chondroitinase, or Ch’ase, has repeatedly been proven to degrade the scar, to promote growth and to improve recovery in animal experiments. However, applying it to people is challenging. The goal of the project “CHASE-IT”, initiated by […]
CRP Peptide therapy research project for spinal injury repair
CRP pre-clinical research - latest update (May 22nd, 2020) CRP Peptide therapy research project for chronic spinal cord injury repair Background information: The formation of an enduring glial scar near the injured site leads to poor nerve regrowth capacity and poor functional outcomes in chronic stages after SCI. Chondroitin Sulfate Proteoglycans (CSPGs) are the major components [...]
Corinne’s “Unfreeze” challenge: Paraplegic Yoga (EN)
Unfreeze! Corinne's "Unfreeze" Challenge: Paraplegic Yoga (EN) . Breathe, “rise above”… This is the promise of yoga ... also for people living with a spinal cord injury. Therefore, I am challenging myself to learn full-body paraplegic yoga and to practice it on a regular basis. Yoga courses for physically challenged people are rare and [...]
Le Unfreeze challenge de Corinne : Yoga pour Parapléqique – FR
Unfreeze! Le challenge "Unfreeze" de Corinne : Yoga pour Paraplégique . Bienvenue sur la page de mon challenge "Unfreeze Your Body/Your mind with Paraplegic yoga" : Réveillez corps et esprit grâce au yoga pour paraplégique" ! Respirer, transcender, se recentrer… Telle est la promesse du yoga… aussi pour les personnes vivant avec une lésion de [...]Corinne’s “Unfreeze” challenge: Paraplegisch Yoga (NL)
Unfreeze! Corinne's "Unfreeze" Challenge : Paraplegisch Yoga (NL) . Welkom op mijn “Unfreeze!" Paraplegisch Yoga challenge! Ademen, gronden: dat is de belofte van yoga… ook voor mensen met een dwarslaesie heel belangrijk. Daarom daag ik mijzelf uit om yoga te leren en het regelmatig te blijven oefenen. "Full body Yoga" cursussen voor lichamelijk beperkte [...]
Spinal cord injury research priorities: feedback to the NIH
The NIH (National Institute of Health - North America) recently invited SCI -related organisations / individuals to express their opinion about Spinal Cord Injury research priorities (send your own input here . Feel free to copy-paste our input below if you like it). On July 29th, we sent the following feedback on behalf of the endParalysis [...]
SCI 2020 Disruption in research to cure spinal cord injury
SCI 2020 Cure spinal cord injury research. Interview with Corinne Jeanmaire Interview made by U2FP.org, per email, in March 2019, for U2FP newsletter ********************************************** We continue our series of reflections from the SCI Community on the NIH conference held this past February - SCI2020: Launching a Decade for Disruption in Spinal Cord Injury Research. Below [...]
E-stimulation helps patients with incomplete spinal injury walk again
E-Stimulation helps two paralyzed men (incomplete spinal injury) "walk" again Picture: EPFL - Switzerland Written by Corinne Jeanmaire - Edited by Beverley Saunders, December 2018. E-stimulation helps patients with incomplete spinal injury walk again Recent news (again) reported a breakthrough study in the field of spinal cord injury research with many headlines reading “three [...]
NIH Disruption in cure spinal cord injury research
NIH Disruption in cure spinal cord injury research: Open letter to Lyn Jakeman - Copy to NASCIC (North American SCI consortium) Written by Corinne Jeanmaire - December 4th, 2018. Open letter sent to Lyn Jakeman (NIH): lyn.Jakeman@nih.gov, with a copy to Kim Anderson (NASCIC) kxa304@case.edu and to NASCIC contact email: info@nasciconsortium.org You may view and [...]
E-stimulation helps paralyzed patients walk again?
E-Stimulation helps a few paralyzed patients "walk" again / take steps. Picture: Susan Harkema, left, Associate Scientific Director of the Kentucky Spinal Cord Injury Research Center at the University of Louisville, with Kelly Thomas, who was paralyzed in a car accident and is learning to walk with the help of a trainer and a [...]
Ch’ase gene therapy for spinal cord injury recovery
Ch'ase gene therapy for spinal cord injury recovery Ch'ase gene therapy for spinal cord injury recovery Joost Verhaagen Liz Bradbury Researchers at King’s College London and the Netherlands Institute for Neuroscience have shown that rats with spinal cord injuries can re-learn skilled hand movements after being treated with a gene therapy. Source: King's College [...]
Dwarslaesie Magazine interview
Dwarslaesie Organisatie Nederland (DON) en endParalysis over dwarslaesie-onderzoek Revalidatiearts Janneke Stolwijk en Corinne Jeanmaire geinterviewd door Dwarslaesie Nederland over onderzoek naar genezing dwarslaesie. Geschreven door Annet Verlouw voor Dwarslaesie Magazine juni 2018. Kan het ooit genezen? Af en toe duikt weer zo’n bericht op in de media: ergens in de wereld claimt een behandelteam een [...]
Our 2017 year report
2017 annual report: click here (English) – hier (Nederlands) – ici (Français) 2016 annual report: click here (English) - hier (Nederlands) - ici (Français) 2015 annual report: click here (English) - hier (Nederlands) - ici (Français) 2014 financial report (6 months only): click here. research for spinal cord injury treatment: EndParalysis foundation raises funds to support research to find therapies treating paralysis after spinal injury Recent Posts Cure spinal cord injury latest therapies, research, [...]Cure spinal cord injury latest therapies research
Spinal cord injury therapies research overview Update: May 2019 This overview was set up by Corinne Jeanmaire, for the endParalysis foundation and for the ESCIF (European Spinal Cord Injury Federation) Research Group. With thanks to Sam Maddox, Chris Powell (blog) and Harvey Sihota (Neurokinex) their input and to Beverley Saunders and Barbara Carlile for their editing support. We have [...]
Can we cure paralysis?
Picture © endparalysis.org: Every year another 250,000-500,000 people become paralysed following an injury to their spinal cord, according to the World Health Organization. Many of them are young, like Jamie (the Netherlands), who became paraplegic after a car accident when he was three years old. Spinal cord injury cure research foundation. Treat or cure paralysis? [...]
Cure Spinal Cord Injury Research 2016 – 2017
A PATIENT'S VIEW... By Corinne Jeanmaire - endParalysis foundation - SCI patient since 2001 We have to be clear: there is still no cure or treatment for spinal cord injury. Judging by the increasing number of clinical trials though, it seems that we might have come a bit closer to achieving a certain level of [...]
Club Hifi Leiden supports endParalysis foundation
Club Hifi Leiden dances for those who can't! Written by Corinne Jeanmaire on June 10th, 2017. Edited by Beverley Saunders. You may argue that dancing is still very much possible even though you are in a wheelchair. Sure, Wheelchair Dancing can be a way for us to express ourselves, perhaps just as much as dancing on one’s own two [...]
Wings for Life World Run Breda
EndParalysis foundation @ Wings for Life World Run Breda! Written by Corinne Jeanmaire, May 2017. Edited by Beverley Saunders. Wings for Life World Run Breda: will you be joining us in May 2018? On 7 May 2017, The Wings for Life World Run took place in several countries around the world. In Breda the Dutch Foundation, endParalysis, participated in order [...]
Bas, a real trooper
R.I.P Bas Written by Corinne Jeanmaire and Anja Hoogendoorn, April 2017. Translated by Beverley Saunders. Today’s cult of happiness drives us to profile ourselves in a bright light always. How else would we get “Likes” from our Facebook friends and maintain the interest of our followers? Nobody likes a sad face. In any event don’t publically discuss your [...]
Fifty-One International supports endParalysis
New donation from Fifty-One International Nord de la France Edited by: Beverley Saunders March 2017: During their last General Assembly, the Fifty-One of the North of France again demonstrated their support to endParalysis foundation. Fifty-One International, just as endParalysis foundation, advocates co-operation across borders. The Social Club was originally founded in Belgium to help the least fortunate [...]Our 2016 year report
2016 annual report: click here (English) - hier (Nederlands) - ici (Français) 2015 annual report: click here (English) - hier (Nederlands) - ici (French) 2014 financial report (6 months only): click here. research for spinal cord injury treatment: EndParalysis foundation raises funds to support research to find therapies treating paralysis after spinal injury Recent Posts Cure spinal cord injury latest therapies, research, treatments 27/09/2021 CH’ASE spinal cord injury [...]
Chondroitinase Clinical Trial for Dogs
A RESEARCHER'S VIEW... By Dr Thanos Didangelos - Kings College, London. One of the key pathological features of spinal cord injury is the accumulation of large quantities of scar tissue (glial scar) within the injury epicentre. The scar blocks neurons from crossing through the injury site and prevents them from transmitting movement and sensory information [...]
Spinal cord injury treatments: stem-cells tourism dangers
Our summary and comments By: Corinne Jeanmaire - endParalysis foundation. Spinal cord injury treatments : the dangers of stem-cell tourism: The article below highlights, once more, the dangers involved in “medical tourism”. So-called “unproven / commercial therapies” are available on the market, in various exotic countries across the world (Mexico, Panama, Iran, China etc) for payment (usually [...]Corinne’s Unfreeze challenge kick-off
Welcome to my "Unfreeze Your Body" Challenge! Ok, this picture is a lie, it's not me 😉 ....... I honestly feel a bit more "paralyzed" than I should these days...That's exactly why I want to stretch (my limits)! Nothing extraordinary, no climbing of Mt Everest! No, I just don't want to be glued to my [...]
Thank you Fifty-one International North of France
Second visit of endParalysis to Fifty-One International Thank you Fifty-one International North of France. Version française: cliquez ici. The Fifty-One International Club of the North of France (http://www.fifty-one-norddefrance.com) extended an invitation to the founder and president of the endParalysis foundation for a second visit to provide [...]
Spinal cord injury research progress towards recovery
PROGRESS AND PROSPECTS OF CHRONIC SPINAL CORD INJURY RESEARCH IN 2015 AND 2016 March 2016 - Update May 2016 Written by Corinne Jeanmaire, for the endParalysis foundation and for the ESCIF (European Spinal Cord Injury Federation) Research Group. With thanks to Harvey Sihota and Chris Powell for their input and to Beverley Saunders for her editing support. The [...]
Paralyzed man riding tricycle
March 2016 – Paralyzed man rides a bike after a cell transplant in Poland. Is this a first step towards reversing spinal cord injury? The BBC reports on the latest progress of the spinal cord injury patient Darek Fidyka. Well, if his so-called “walking” performance reported at the end of 2014 and through 2015 was less than […]
Pr. Verhaagen spinal cord research
Source: Revalidatie Magazine – Januari 2016 Translation from Dutch to English by our volunteer Beverley Saunders. “We’re trying to shake the nerve cells awake” By John Ekkelboom In addition to the development of technological aids for people with spinal cord injuries, scientists worldwide are involved in researching a possible cure for this condition. Joost Verhaagen, Professor in the Molecular Biology of Nerve Tissue Regeneration at the Vrije […]
Help us win!
November 2015 Help us win with only 2 clicks! We've reached the finals of the "Medical Inspiration" competition, which is organized in the Netherlands, to promote collaboration between patients and researchers. If we win, the €50,000 prize will go to Prof. Dr Verhaagen's lab to co-finance the research project described in the video posted on Facebook. To win, we need as many [...]
Paralyzed man walking again
Sept. 2015: Paralyzed man walking again thanks to mind-controlled technology. “UCI brain-computer interface enables paralyzed man to walk. Proof-of-concept study shows possibilities for mind-controlled technology” EndParalysis foundation’s comments: Again some good news is brought to us showing the potential of scientific and technological developments. This time, a long-paralyzed man, with a complete chronic spinal cord injury, […]
3D printing & nerve regeneration
Picture: This is a 3-D printed nerve regeneration pathway implanted in a rat helped to improve walking in 10 to 12 weeks after implantation. Credit: University of Minnesota College of Science and Engineering How 3D printing guides might one day help nerve regeneration after spinal cord injury. If you talk about possible future cure, treatment or recovery […]
Vote for endParalysis!
August 2015 Please help us with a few clicks! EndParalysis foundation is participating in a small competition to win 1000Euro. We need your vote! Please vote here (there are 3 very short steps. Unfortunately the website of the organizer is only in Dutch, but the procedure is short and simple enough for anybody to take […]
Donation box
Our new beautiful donation box! With great thanks to the following people who have given their time and talents to the foundation: – a very talented designer and architect, William vd Berg, www.senserius.com for designing and making the box. – the workshop that allowed us to laser the donation box: Broeinest – Strijp S, a great […]
We are in the finals!
Medische Inspirator challenge: we made it to the finals! As indicated in our June 2015 newsletter, we are currently involved in an exciting competition with the chance to win €50,000. It’s called “Medische Inspirator” and is organized by the Dutch organization ZON-Mw to promote cooperation between researchers and patients. Click on “cc” on the vimeo reader […]
Thank you Mieke & Rotary
Mieke: a special story and a very special person! Mieke knows a lot about spinal cord injury. Actually, since 2005, she has had to live with one, a very high one, twenty four hours a day. She became paralysed from the neck down on the day she decided to take a nap with her son […]
EP at 51 International
EndParalysis introduction to Fifty-One International … Corinne Jeanmaire, Founder and President of the endParalysis foundation recently went to France, her native country, to introduce the foundation to the Fifty-one International club. Fifty-One International is a service-club present in various European countries under which Belgium, France, the Netherlands, Switzerland, Luxembourg and Germany. Its mission lies in “Supporting social […]
Endparalysis donates €25.000
EndParalysis first financial contribution to spinal cord injury research. EINDHOVEN (The Netherlands) – April 17, 2015 The endParalysis Foundation (www.endparalysis.org) announces a donation of €25.000 as a contribution to facilitate the promising “Chondroitinase” therapy and make it ready for clinical trials on spinal cord injury patients. The donation is accepted by Prof. Joost Verhaagen of the Netherlands Institute of Neuroscience (NIN-www.nin.nl) in Amsterdam, […]
Promoting endParalysis foundation
PROMOTING ENDPARALYSIS AND RIBOTAS Picture by Igno van Heijst. Elise and Corinne have been out all day Saturday March 21st, in order to promote both the endParalysis foundation and Ribotas. We had the opportunity to meet many spinal cord injury patients at an SCI reunion day in Haren, North of the Netherlands, organized by Dwarslaesie […]
Thanks to Van Hooff Transport
Thanks to Van Hooff Intern Transport, our new sponsor! Does an internal transportation company have anything in common with the EndParalysis Foundation? Yes, it does! Van Hooff Intern Transport’s motto is: “Samen denken, samen doen”/ “think together, act together.” This is precisely what we want to achieve at EndParalysis: work in teams to challenge the […]
Spinal cord research progress towards recovery
PROGRESS AND PROSPECTS OF CHRONIC SPINAL CORD INJURY RESEARCH IN 2014 and 2015 February 2015 - See our latest update (March 2016 here) Written by Corinne Jeanmaire, for the EndParalysis foundation and for the ESCIF (European Spinal Cord Injury Federation) research group. With thanks to Ruth Purves and Chris Powell. The purpose of this post [...]Thank you Ribo-tas!
Big thanks to Ribo-tas for sponsoring Endparalysis! RiBo-tas is a small, one-person enterprise, making bags that are adjusted to wheelchairs and make it much easier for somebody in a wheelchair to grab their belongings or mobile phone. The bags are carefully measured and taylor-made by Elise, an inventive and resourceful Dutch spinal cord injury patient. […]
Our ambassador
Thank you Thierry Schmitter! Corinne Jeanmaire recently met Thierry Schmitter, Endparalysis foundation’ ambassador, to inform him about the foundation’s progress and agree on joint actions. Thierry is paraplegic. He went through a lot of challenges, won quite a few medals and is, among others, the living proof that human beings can adapt to rather difficult […]
Chondroitinase & breathing
Laboratory breakthrough offers promise for spinal cord injury patients to breathe on their own again Source: http://medicalxpress.com Case Western Reserve researchers have developed a procedure that restores function to muscles involved in the control of breathing – even when they have been paralyzed for more than a year. The breakthrough offers hope that one day […]
AD Oct. 2014
Endparalysis foundation about BBC breaking news "Paralysed man walks again after cell treatment" October 2014. Corinne Jeanmaire was recently interviewed by the Dutch newspaper AD regarding Pr Raisman's success story "Paralysed man walks again after cell treatment" (Double-click on picture to read the article/ in Dutch). To summarize: we welcome this positive and promising development, [...]ANBI tax deduction
Donate to Endparalysis.org and get money back! The Endparalysis foundation just received a letter from the Dutch tax department confirming its ANBI Status. The ANBI status (Algemeen Nut Beogende Instelling) implies that the people donating to the foundation are entitled to tax deduction. Tax deduction can go as high as 52%, under some conditions, which is [...]Partnership with ALARME
Partnering to accelerate research to cure spinal cord injury The Endparalysis Foundation is happy to announce a partnership with the ALARME Association. ALARME is a French organization (www.alarme.asso.fr) dedicated to supporting spinal cord injury research. It also provides excellent information about regenerative spinal research and the current clinical trials / treatment options through its forum […]
Endparalysis at ISCOS conference
ISCOS 2014 The Endparalysis Foundation recently participated in a global scientific conference regarding spinal cord injury (SCI). The International Spinal Cord Society (ISCOS) annual scientific meeting took place in Maastricht, Netherlands, September 2-4th, 2014. Corinne Jeanmaire, founder of The Endparalysis Foundation, had the opportunity to introduce the foundation during an ISCOS consumer workshop. She also participated […]
European partnership
European research advocacy to cure spinal cord injury The Endparalysis Foundation just entered a partnership with the European Spinal Cord Injury Federation (www.ESCIF.org). The proposal for partnership was officially approved after Corinne Jeanmaire introduced the foundation to ESCIF’s Assembly of Delegates during latest ESCIF annual congress (August 27th, 2014). The collaboration will mainly consist in […]
ED July 2014
Corinne Jeanmaire, the founder of Endparalysis foundation, was interviewed by the Eindhoven’s Dagblad (Dutch newspaper) about the launch of the new foundation supporting spinal cord injury research.
Foundation launch
Endparalysis Foundation: a good start! …/… Officially launched! The Endparalysis Foundation was officially launched on June 27th, 2014, in the Netherlands. A room full of people with various background and interests were all carefully listening to the reasons why the foundation was created and about its specific profile and innovative way of working. Many spontaneous compliments were received, […]